RAWR The Podcast

RAWR with Jorden: How finding a community and giving back is the only way forward

Grab a coffee or a wine and enjoy this chat between friends - it's a goodie!  
This episode really does have a bit of everything, including Jorden's fight for a diagnosis from the very beginning for her handsome boy Lincoln, sibling comparisons, diving deep down the medical/disability rabbit hole (if you know, you know), finding a community who get it, and her passion for raising awareness and connecting with others in this space. Jorden is so down to earth and so damn relatable! We know you'll love her as much as we do!
Mentioned in this episode:- Jorden's Instagram: @lincolns.journey- Second Scout Routine Helpers- Hayley – Alee Disability Support Services- FreeArm- Tubie Fun

RAWR with Lizzy: “She’s mine and my responsibility and I’m her carer…forever.”

We had a very special guest join us for this episode – our friend Lizzy, AKA @mumof2pinks, who is super vulnerable in sharing her experience of being a full-time carer to her daughter Georgia. Lizzy breaks down the walls – and the stigma – and shares some hard (but oh so relatable) truths about losing her identity, the constant fight in all areas of her life, and her struggle every day to wake up and do it all over again. There’s no bullshit here, it’s honest and raw, and we are so thankful for her vulnerability (but don’t worry, there’s still plenty of giggles!)
This episode is sponsored by Rudie Nudie: Waterproof playmats and picnic rugs for families that love fun!
Mentioned in this episode:- Melanie Dimmitt @the_special_book

We’re back, and still fighting the good fight!

We're back!!
Welcome to what we’re calling Season Two, cos it makes it sound like we totally planned the 6 week break and have this all under control!
But seriously, we are feeling FRESH and ready to keep fighting the good fight alongside our community of RAWR-ers. This week’s chat is just that – a RAWR Real Talk catch up between friends about everything that’s been happening over the past few weeks, including Riley’s upcoming PEG surgery, Jack’s chronic cough and how it’s absolutely OK to cut back on therapies.
Thankyou for being here, please help us get back up the charts and into people’s ears by rating, reviewing, subscribing, and sharing us far and wide.
This episode is sponsored by Ultimate Patch : Natural health patches packed with ingredients known to assist with moods, sleep, stress, anxiety, fatigue, balance and libido!
Amy & Grecian x
Mentioned in this episode:- Ronald McDonald House Charities- Go Fund Me: Grow Baby Gracie - Squiqz- Alee Disability Support Services- Melanie Dimmitt, author Special & The Blend- Colleen Hoover (Books)

RAWR with Emma: High-risk pregnancy, traumatic birth and societies unrealistic expectation of motherhood

Emma's BAAACK! RAWR's original co-host Emma came back for a 'no bullshit' check-in and to once again break the stigma surrounding some very important and poignant topics. We laughed, we cried and we didn't hold back talking about the anxiety and trauma of high-risk pregnancy after loss, as well as the lack of control and heartache we feel when things don't go the way we hoped. Emma talks about her struggles with societal expectations of pregnancy and birth and what that should look like, and how heartache and gratefulness can co-exist. Her words are powerful and need to be heard far and wide. What a woman. 
This episode is sponsored by Zoono: the next level germ protection you've been waiting for. Zoono currently have a 40% off summer stock clearance sale! 
Mentioned in this episode:
Blog: The anxious reality of a high-risk pregnancy 

Re-defining Tube Feeding: Squashing the myths and misconceptions of tubie life

This was SO much fun! In honour of the recent Feeding Tube Awareness Week (FTAW 2023), we wanted to squash the myths and misconceptions of tube feeding, and who else do you turn to other than the queens in this space?! We sat down with Melanie Dimmitt, author of The Blend, and Sarah Thomas, founder of Wholesome Blends, to share some of our own personal experiences and stories as mama's of children with a feeding tube, and let us just say it’s so freaking refreshing to be surrounded by people who can laugh at the same ‘not so average’ mama stuff that you don’t read about in the baby books!
If you don’t have or know a tubie, I highly encourage you to listen through this and learn something new – it is likely that your own child will go to school with a child with a feeding tube or a disability and we think it’s so important that us as parents teach them about and celebrate differences. And if you are the parent of a tubie yourself, grab a wine and enjoy this chat between friends – this is going to fill your cup for the week! 
Mentioned in this episode:Wholesome Blends'The Blend' MagazineSpecial BookToo Peas in a PodcastFeeding Tube Awareness Foundation

RAWR with Sarah from Wholesome Blends: Talkin’ real foods for your tubie

Happy Feeding Tube Awareness Week!
In honour of FTAW, we invited the incredible powerhouse Sarah from Wholesome Blends onto the pod. Sarah is such a good time, she found a gap in the market as a consumer - she wanted and needed a product for her own tube fed child and couldn’t find – so she created it! We will let the expert herself tell you all about it during the episode, but in a nutshell, Wholesome Blends is real food for tubies. We chat with Sarah about her journey to tube feeding her son Lewis, to creating her successful enterprise, and her tips and tricks on starting out with blends.
Sarah is back later this week for a BONUS episode to help us debunk some of the myths and misconceptions surrounding tube feeding – what a week it's going to be!!
Enjoy!
This episode is sponsored by Wholesome Blends: Australasia’s first REAL food option for enteral feeding. Each shelf-stable pouch of Wholesome Blends is high in calories and contains nothing but fresh fruits, vegetables and proteins. No nasties, added sugars or preservatives.
Mentions
Wholesome BlendsFTAW - Feedingtubeaware.com.auIDDSI organisation Ausee IncMelanie Dimmitt – SpecialThe BlendHECSATubie FunVitamix and BlendTec Blenders - Both available from Wholesome Blends

BONUS Ep: RAWR with our little darlings Riley & Jack

Just because it's too cute not to share with the world!! Enjoy a bite-sized chat and some giggles with our little darlings Riley & Jack (with some Hanna & James mixed in!) We think they're pretty special! 

RAWR with Adelyn & James: Big sibling love

We sat down with our eldest darlings, Adelyn and James, and asked them about the ups and downs of life as big siblings and how they feel about Riley and Jack's disabilities and medical needs. Basically a whole bunch of cuteness that the world needs to hear! Enjoy! 
And you heard our little legends - please leave us a review, give us 5 stars, and share us with your friends!
Mentioned in this episode:Rosalyn & RaeAlee Disability Support Services

RAWR with Tori: Sharing the world of NICU from a nurse’s perspective

Introducing a VERY special guest to RAWR The Podcast, Tori Meskin aka Nurse Tori!
Tori is an absolute powerhouse, she is a registered nurse with 10 years experience specialising in neonatal and paediatric intensive care, as well as a blogger, content creator, keynote speaker AND podcaster. She is a natural born leader and a positive and inspiring role model who is passionate about presenting a fun and relatable side of the healthcare world full of education, health, wellness and motivational topics. Amy sat down with Tori (unfortunately Grecian was in hospital at the time with Riley) to gain an insight into NICU life from a nurse’s perspective, including the highs and lows of being a NICU nurse, her tips for both nurses and families who experience NICU, the realities of caring for the tiniest of babies and their families, and we also asker her your listener questions!
This episode is sponsored by Smoo Mini Smoothie Cups : helping parents navigate fussy eating, encouraging healthier habits using a positive and playful approach.
Don’t forget to enter our GIVEAWAY with Smoo over on Instagram on either (or all) of these pages:@smoo.com.au | @rawr.thepodcast | @growing_our_tribe | @miraclemumma
Mentioned in this episode: Tori’s Instagram: @nurse.tori_Tori’s Website: Tips from ToriTori’s Podcast: The Cellfie Show PodcastMarch of DimesPerfectly PreemieMiracle MummaEvery Tiny Thing

Advocating for your sick child: how it’s not always as simple as it seems

This week we talk about advocating and fighting for your child (we've all been there), the many different factors that come into play, and how it's not always as simple and easy as it seems. Alongside our own experiences, we break down the six main 'negative' themes identified in the blog titled 'The how to advocate for your child one' by Penny from Sick Happens that parents have encountered when in hospital with their sick child. 
Disclaimer: the purpose of this episode is not to 'bag out' healthcare professionals or systems, but to give families a voice and shine a light on some of the ways that we struggle to advocate and feel heard when our child is unwell. 
Mentioned in this episode:- Sick Happens https://www.sickhappens.com.au/blog/the-how-to-advocate-for-your-child-one- Hospital Paediatrics 2020 Study